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Link Posted: 9/20/2023 1:01:47 AM EDT
[#1]
Hey , Bo . Not much I can say beyond what's been said. I am following you  though . I've  been a nurse for 32 years and I've known similar stories . Always touches me and focuses me on my own mortality . My prayers are with you , Brother  .
Link Posted: 9/20/2023 1:02:33 AM EDT
[#2]
Prayers said for you and your family. Stay strong.
Link Posted: 9/20/2023 1:04:53 AM EDT
[#3]
God bless you and keep you. I just lost an uncle to something similar. And I got another well on his way.
Link Posted: 9/20/2023 1:09:41 AM EDT
[#4]
Hmu if you end up in DFw

We'll go do fun stuff. BBQ and machine guns.
Link Posted: 9/20/2023 9:21:06 AM EDT
[#5]
For those asking, I haven’t had any of the covid shots and I’m glad I decided not to get them.

My Oncologist put me on a list for a drug trial. I haven’t been chosen yet, but I’m on the list it’s for T cells.

My sister is researching some other clinics and options. I will probably be getting a second opinion within the next week or two.

I really do appreciate you guys and this site. After 15 + years it still amazes me how this community can come together.
Link Posted: 9/20/2023 10:55:37 PM EDT
[#6]
What part of the state are you in?
Link Posted: 9/20/2023 11:37:59 PM EDT
[#7]
Discussion ForumsJump to Quoted PostQuote History
Originally Posted By kc215:
What part of the state are you in?
View Quote


Wichita area.
Link Posted: 9/20/2023 11:44:12 PM EDT
[#8]
Discussion ForumsJump to Quoted PostQuote History
Originally Posted By Bo_Knows:
For those asking, I haven’t had any of the covid shots and I’m glad I decided not to get them.

My Oncologist put me on a list for a drug trial. I haven’t been chosen yet, but I’m on the list it’s for T cells.

My sister is researching some other clinics and options. I will probably be getting a second opinion within the next week or two.

I really do appreciate you guys and this site. After 15 + years it still amazes me how this community can come together.
View Quote


Thanks for the update, Bo. Am still praying for you.

Re: your sister's research. I know it doesn't compare to your situation however I was diagnosed with prostate cancer in 2012 and (at the recommendation of neurologist and also orthopedic surgeon friends), changed my original urologist and hospital to go to Cleveland Clinic to resolve it. Had it done late September of that same year. Those great folks got all of my cancer and I think the world of this outstanding institution. I would highly recommend you/your sister look into what they might offer.

My initial meeting, my pre-op and the surgery and post surgical care were incredible in my estimation. Maybe Cleveland Clinic offers the equivalent relative to esophageal cancer.
Link Posted: 9/20/2023 11:45:32 PM EDT
[#9]
Really sucks, op.  And incredible of you to share. Bo should know I'm praying for you and your family.
Link Posted: 9/20/2023 11:58:34 PM EDT
[#10]
Prayers for you and your family.  Thanks for sharing and stay strong!
Link Posted: 9/21/2023 12:03:26 AM EDT
[Last Edit: EastWest] [#11]
Link Posted: 9/21/2023 1:07:58 AM EDT
[#12]
Heartfelt prayers sent to the Lord.
Link Posted: 9/21/2023 1:49:07 AM EDT
[#13]
Godspeed brother.
Link Posted: 9/21/2023 2:08:36 AM EDT
[#14]
Praying for you.

Father please grant healing and mercy in the name of Jesus.
Link Posted: 9/21/2023 3:25:09 AM EDT
[#15]
Still praying for you Bo.
Link Posted: 9/21/2023 4:17:08 AM EDT
[#16]
cancer is the thief of each person's time before its' natural due date.  best wishes to fight it as long as you can.
Link Posted: 9/21/2023 5:24:28 AM EDT
[#17]
prayers.
Link Posted: 9/21/2023 6:37:43 AM EDT
[#18]
Sorry brother. You and yours are in my prayers.
Link Posted: 9/21/2023 11:42:50 PM EDT
[#19]
Discussion ForumsJump to Quoted PostQuote History
Originally Posted By Bo_Knows:


Wichita area.
View Quote

You need anything, I'll do my best to make that drive down from KC.  
Blunt question.... are all your affairs in order?  I hope you have a will/trust/DPOA for medical and financial stuff.
Link Posted: 9/22/2023 12:46:04 AM EDT
[#20]
Discussion ForumsJump to Quoted PostQuote History
Originally Posted By Bo_Knows:
For those asking, I haven’t had any of the covid shots and I’m glad I decided not to get them.

My Oncologist put me on a list for a drug trial. I haven’t been chosen yet, but I’m on the list it’s for T cells.

My sister is researching some other clinics and options. I will probably be getting a second opinion within the next week or two.

I really do appreciate you guys and this site. After 15 + years it still amazes me how this community can come together.
View Quote
Been thinking about you and waiting to hear your response regarding the covid shots.  I'm VERY relieved this is the case, and it gives me a lot of hope for your situation.  We'll be here pulling for you, Bo!  Please give us updates whenever you can.
Link Posted: 9/22/2023 10:50:47 PM EDT
[#21]
Bo I just read this thread. I am sorry for the fight you have ahead if you, and the decisions you have to make. I was your son's age when my father went through a similar fight. I will and am praying for you and your family for comfort, and for wisdom for you and the doctors. Be blessed and know God is all capable.
Link Posted: 9/22/2023 11:03:32 PM EDT
[#22]
Sorry Brother.
Be Brave; Be Courageous. Don't be afraid to leave this Planet.
My Wife had those things when Cancer killed her in 5 short weeks at the age of 52.
Link Posted: 9/22/2023 11:08:38 PM EDT
[#23]
Discussion ForumsJump to Quoted PostQuote History
Originally Posted By bandanabandit1:
Damn dude, prayers for the best.



Get right with God in the meantime.
View Quote



This...

God bless you OP.
Link Posted: 9/22/2023 11:17:40 PM EDT
[#24]
I don’t have much to add, but you’re in my family’s prayers.
Link Posted: 9/22/2023 11:18:14 PM EDT
[Last Edit: marlinfan] [#25]
Double tap.
Link Posted: 9/22/2023 11:33:41 PM EDT
[#26]
Bo,

I only read until page two where I saw you are leaning towards fighting. Please do. I watched my husband lose his dad around your sons age, it was so hard. He just didn’t have it in him to keep fighting. I hope and pray you do. Your kids need as long as you have and everything you can give to be here with them. Even if they are grown. Miracles happen everyday, you could be one. Find a good cancer specialist hospital, you may qualify for trials. Don’t give up!! I will keep praying for you. Damn there is a lot of dust in here…..

You got this Bo!!
Link Posted: 9/22/2023 11:42:12 PM EDT
[#27]
Sorry to hear it! May God help yo,u and guve you peace.
Link Posted: 9/23/2023 2:13:54 AM EDT
[#28]
Do it what ever way you want to. Do you, no shame it going out the way you want. Also Fuck cancer, took my father in 2019.
Link Posted: 9/23/2023 8:48:33 AM EDT
[#29]
That sucks and I'm sorry.

If it was me...Go hit that bucket list hard.   Pull the kids from school and spend all the time you can with them.  "Kids, you're homeschooling this year so we can fly the world and blow every penny I have on pictures and memories.  Just in case."
Link Posted: 9/24/2023 8:23:54 PM EDT
[#30]
You need to keep weight up, meal shakes suck, add ice cream or frozen strawberries, you need weight on
Link Posted: 9/25/2023 5:28:16 PM EDT
[#31]
I wish I could figure out how to edit the title.

Update 09/25

In the ER waiting for a bed to open up on the oncology ward. I can’t stop vomiting. I haven’t started treatment so that’s not what is causing it. I’m down to about 110 lbs. of course they are giving me fluids through the iv and maybe nutrients at a later date. I have a couple teams of doctors working on solving the problem. There has been talk of a feeding tube directly in my lower intestines so I can be vomiting and still get nutrients. They think my intestines are shutting down. If that’s the case, it may be too late for treatment.

Not sure what’s going to happen but the next couple of days I will try to update this thread.
Link Posted: 9/25/2023 5:36:42 PM EDT
[#32]
Praying for you brother.  Keep your spirits up.
Link Posted: 9/25/2023 7:33:18 PM EDT
[#33]
More prayers headed your way!
Link Posted: 9/25/2023 8:40:47 PM EDT
[#34]
Prayers for Bo
Link Posted: 9/25/2023 9:14:13 PM EDT
[#35]
One more person out here in the universe praying for you Bo.

I don’t have any advice or insight.  I just have my prayers and compassion, but I will pray daily for you.  Fighting is admirable, but so is showing your kids that you’re right with God and. It afraid to go home because you believe.
Link Posted: 9/25/2023 9:17:07 PM EDT
[#36]
Discussion ForumsJump to Quoted PostQuote History
Originally Posted By Bo_Knows:
I wish I could figure out how to edit the title.

Update 09/25

In the ER waiting for a bed to open up on the oncology ward. I can’t stop vomiting. I haven’t started treatment so that’s not what is causing it. I’m down to about 110 lbs. of course they are giving me fluids through the iv and maybe nutrients at a later date. I have a couple teams of doctors working on solving the problem. There has been talk of a feeding tube directly in my lower intestines so I can be vomiting and still get nutrients. They think my intestines are shutting down. If that’s the case, it may be too late for treatment.

Not sure what’s going to happen but the next couple of days I will try to update this thread.
View Quote



Praying for you Bo
Link Posted: 9/25/2023 9:24:31 PM EDT
[Last Edit: Boingo] [#37]
Dup post
Link Posted: 9/25/2023 9:25:37 PM EDT
[#38]
Discussion ForumsJump to Quoted PostQuote History
Originally Posted By Bo_Knows:
I wish I could figure out how to edit the title.

Update 09/25

In the ER waiting for a bed to open up on the oncology ward. I can’t stop vomiting. I haven’t started treatment so that’s not what is causing it. I’m down to about 110 lbs. of course they are giving me fluids through the iv and maybe nutrients at a later date. I have a couple teams of doctors working on solving the problem. There has been talk of a feeding tube directly in my lower intestines so I can be vomiting and still get nutrients. They think my intestines are shutting down. If that’s the case, it may be too late for treatment.

Not sure what’s going to happen but the next couple of days I will try to update this thread.
View Quote


Praying for you Bo. I think of you every day. To change the thread title, edit your OP (the first post) and you can edit the title there.
Link Posted: 9/25/2023 9:42:49 PM EDT
[#39]
My prayer tonight will be specifically for you, Bo.

My father opted to cease treatment because the onco said the extra months were a tradeoff with quality of life, but that was back when chemo was very harsh. I respected his decision, but in retrospect I wish we'd of had more time.

Keep the best, most upbeat mindset you can. I'm a firm believer it makes a difference.

Proud member of the Fuck Cancer Allegiance.
Link Posted: 9/25/2023 9:44:30 PM EDT
[#40]
Fight it. Do everything you can. Homeopathic mixed with chemo and every option under the sun.
Link Posted: 9/25/2023 9:47:55 PM EDT
[#41]
You will be in my prayers. Cancer sucks.
Link Posted: 9/25/2023 10:18:53 PM EDT
[#42]
You're in my prayers Bo.
Link Posted: 9/25/2023 10:50:09 PM EDT
[#43]
Thanks for today's update, Bo. I can only imagine how tough this is for you. Still praying for you and I hope for the very best for you and your family.
Link Posted: 9/26/2023 1:21:34 PM EDT
[#44]
Praying for Bo
Link Posted: 9/27/2023 6:29:30 PM EDT
[#45]
Keep us posted! Praying for you!
Link Posted: 9/29/2023 12:57:43 AM EDT
[#46]
Update: 09/28

I was admitted to the hospital. After a couple of days and many tests, the doctors believe the cancer is causing the vomiting. Looking at the PET scan, the cancer is spread in a way similar to birdshot would be if I would have been shot in the stomach. They cannot remove it because there are so many small tumors spread out. I will be taking chemo to hopefully shrink the tumors and keep the cancer at bay.

One of the biggest obstacles to overcome in order to get chemo is to get some nutrients in me. They have been feeding me through my IV and today they put a feeding tube in. The tube was placed in a way that I will not vomit up the food that goes down it. In fact, they crushed a pill and mixed it with water then gave it to me via my new tube.

I feel so much better tonight after getting some nutrition. I had hit 110lbs on Monday morning, but my doctors were able to stop the decline and it seems I have gained a pound.

God is good and he is still in charge and on the throne. Thank you all for the thoughts and prayers. It means so much to me.

Bo
Link Posted: 9/29/2023 1:14:45 AM EDT
[#47]
Never give up.

Prayers sent, Bo.
Link Posted: 9/29/2023 1:37:37 AM EDT
[#48]
Prayers out again for you Bo.
Hang in there buddy.
Link Posted: 9/29/2023 8:30:00 AM EDT
[#49]
Keep fighting!
Link Posted: 9/29/2023 8:43:57 AM EDT
[#50]
Praying for you! Hang tough!
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