[ARCHIVED THREAD] - Autoimmune Issues.... (Page 1 of 2)
Posted: 6/21/2017 3:36:13 PM EDT
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Anyone else deal with them?
I had my gall bladder removed 2 months ago and about a month ago started having severe muscle and joint pain throughout my body. Been referred for Metal Allergy testing as it is suspected my immune system is going crazy over the titanium (plus other metal) clips they used during surgery. Very frustrating as a lot of Doctor's don't believe this can happen. I was diagnosed with Drug Induced Lupus a few years ago from prescription medicine I was prescribed and also deal with several food allergies. I have a lot of autoimmune issues. It sucks to feel so bad as in reality I am a very healthy person with an overactive immune system that likes to attack everything. Fortunately I am close to one of the leading hospitals in the nation for this sort of thing. |
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Had Graves. In remission for about 10 years.
Docs say I'm good although I feel they might be wrong. Many joint issues. Was tested two months ago and all showed good for rheumatoid factor and no inflammation. I'm 43. *** doc thinks it's cause I used to lift weight for so long and so heavy. I.e. Bench 3x6 405lbs/ leg press over 1200 lbs for reps.... so he might be correct. Very lean and in shape now besides some joint pains. |
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Anyone else deal with them? I had my gall bladder removed 2 months ago and about a month ago started having severe muscle and joint pain throughout my body. Been referred for Metal Allergy testing as it is suspected my immune system is going crazy over the titanium (plus other metal) clips they used during surgery. Very frustrating as a lot of Doctor's don't believe this can happen. I was diagnosed with Drug Induced Lupus a few years ago from prescription medicine I was prescribed and also deal with several food allergies. I have a lot of autoimmune issues. It sucks to feel so bad as in reality I am a very healthy person with an overactive immune system that likes to attack everything. Fortunately I am close to one of the leading hospitals in the nation for this sort of thing. I'm taking cyclosporin A (T-cell imm suppressant) and prednisone (antiinflammatory) for what nephrologists have empirically concluded is a kidney problem with an autoimmune component. I think any time you have surgery or injury, you are at risk at exposing antigens in the wrong areas that your body wants to decrease. Metal reactions can occur, and they may or my not involve an immune component (eg., one of the assistants in a dental office I was in reacted against silver-mercury and had weal-flare reactions where her arm came into contact with amalgam. What stimulated her mast cells could have been silver-mercury responding to IgE, but it could have been any number of other things too). The immune system has been viewed as an autoimmune system, where autoimmunity is the rule, not an exception. I pretty much believe this. The immune system, at its core, is a self recognition system, not a non-self recognition system. |
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Psoriasis and psoriatic arthritis checking in.
Auto immune diseases are common in my family. I've been on Humira for 7+ years and it changed my life for oh so much the better. I had plaques and bleeding sores from my scalp to under my toe nails and finger nails. My crotch bled. My life was horrible. I've had no appreciable side effects. Get good treatment. If you don't like your condition keep looking for a better doctor. Avoid wasting time and money on goofball cures and homeopathic/crystal therapies. The better your overall health, the better the results. I got on Humira, lost 60 pounds, exercised, learned ballroom dancing, and then met my wife at dance lessons. Up until that point I was simply waiting to grow old enough to die. |
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Psoriatic arthritis without the skin condition here for the last 7 years. Took 3 agonizing years to get a proper diagnosis. Docs finally figured out that a normal rheumatoid factor but sky high TNF might indicate something! Under control now with methotrexate and Humira. Without the biologics, life would be a living hell.
Wife had lung cancer with subsequent surgery and chemo with cisplatin. The heavy metal treatments led to fibro and addisons. Not much to be done with either one except plan ahead and be aware of what is happening. The alternative is to be dead. |
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Psoriatic arthritis without the skin condition here for the last 7 years. Took 3 agonizing years to get a proper diagnosis. Docs finally figured out that a normal rheumatoid factor but sky high TNF might indicate something! Under control now with methotrexate and Humira. Without the biologics, life would be a living hell. Wife had lung cancer with subsequent surgery and chemo with cisplatin. The heavy metal treatments led to fibro and addisons. Not much to be done with either one except plan ahead and be aware of what is happening. The alternative is to be dead. |
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Anyone else deal with them? I had my gall bladder removed 2 months ago and about a month ago started having severe muscle and joint pain throughout my body. Been referred for Metal Allergy testing as it is suspected my immune system is going crazy over the titanium (plus other metal) clips they used during surgery. Very frustrating as a lot of Doctor's don't believe this can happen. I was diagnosed with Drug Induced Lupus a few years ago from prescription medicine I was prescribed and also deal with several food allergies. I have a lot of autoimmune issues. It sucks to feel so bad as in reality I am a very healthy person with an overactive immune system that likes to attack everything. Fortunately I am close to one of the leading hospitals in the nation for this sort of thing. Dood, can you pm me where this hospital is? I see the same state so I am wondering. Hope you feel better. |
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Are you seeing a rheumatologist or is this from an Osteopath/homeopathic doctor? I've learned since that immune system disorders can come in many forms and severity. Very thankful that I was able to finally get on a treatment plan that worked and hope others can find relief. |
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I got lots of bad stuff going on inside me. Hashimotos for one. What is your ANA titration level. They confirmed something was REALLY wrong with me when they got these results. The real problem is finding out exactly what it is that is wrong.....
It's really cutting edge medicine. I can hardly understand what they're talking about after 3 sentences but ANA's (anti nuclear antigens) are responsible for just about every process that occurs inside the body. Binding protein receptor sites, cell mimickry, real crazy stuff.... |
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https://en.wikipedia.org/wiki/Alopecia_areata
Caused by some women in my life several times over the past 14 years. Totally serious, stress from women. Back to normal now and no fucking desire to deal with any drama ever again!  
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| RA and Reynaud's here. I mostly just soldier through the pain, but the loss of circulation in my extremities in even mild weather can be a royal pain in the ass. Coworkers just cannot fathom that I can't just put on a sweater and be fine when they crank the AC to 60. |
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RA and Reynaud's here. I mostly just soldier through the pain, but the loss of circulation in my extremities in even mild weather can be a royal pain in the ass. Coworkers just cannot fathom that I can't just put on a sweater and be fine when they crank the AC to 60. Hematology ruled out amyloidosis and autoimmune hepatitis the other week at least. Waiting on a rheumatology consult now. On top of a brain tumor, wrecked endocrine system, totalled back, type 1.5 'betus, etc. 
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crohn's had part of my colon and small intestine removed after a severe infection in intestine and bladder. |
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Type 1.5 diabetes (late-onset autoimmune, misdiagnosed as Type 2 for the last 20 years). Diagnosed last month with Stage 3 kidney disease. Also just learned I have IgA nephropathy so I'm working with a naturopath to find out what's triggering it.
WTT ammo and mags for a kidney 
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Same, 16 inches of colon removed and a fistula between the colon and bladder  Going on 17 fucking years... Quoted:
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crohn's had part of my colon and small intestine removed after a severe infection in intestine and bladder. Going on 17 fucking years...  Now I empty poop from a bag five times a day. 
Also ankylosing spondylitis. 
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Big ol' pile of them. Getting really tired of doctors saying "well it's really rare" and "that's interesting". not a pleasant experience. Doctor was surprised I remembered it.
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15 years ago, my wife slowly developed symptoms of joint pain, joint swelling, general fatigue, headaches, and so forth. This went on for a year or so. Rather than go to a "specialist" and get slapped with treatments for the rest of a shortened life, she played with elimination of various dietary items, one at a time, for at least 1 week each.
Lo and behold, after two weeks without whey/dairy products, she was pretty much pain-free. Within a month all symptoms were gone. What would have been classified as one of these "special" disorders or rheumatoid arthritis was simply development of an allergy to anything that results from cow's milk (goat products are fine). She's sensitive enough that a single accidental ingestion of whey/milk/cheese produces a reaction within 30 min. Now, what caused the onset is up in the air, but at least the treatment is very straightforward - dietary adjustment. With all of the weirdness in the American diet and drug intakes in general, I think it's very possible that a lot of this happens to people during times of peak physical and mental stress - including post-op intervals. You guys that are dealing with pseudo-arthritic symptoms, maybe it would be worth your while to run 1-2 week experiments involving parts of your diet. |
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Lots of allergies since 2 years old. Some food, some environmental. Eczema and asthma. Looking forward to that arthritis. |
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Shit I doubt it would even slow your ass down at cola warrior. I've had this nonsense for 30 years and it hasn't stopped me from anything...well I mean besides anything resembling a fast run time but that's I'm sure.
eta: Sorry if I don't recognize your username. I did west 2 and 3 and cwt 1 and 2 but I'm lucky to link names to faces. 
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I can't blame the utter chug fail on physical infirmities. I've never done a clean chug.
eta: Sorry if I don't recognize your username. I did west 2 and 3 and cwt 1 and 2 but I'm lucky to link names to faces. |
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What a fucking night.....1 A.M. and just got home. They had to go through the suicide protocol because I told the little nurse practioner that was acting as the E.R. Dr. to go screw himself. He deserved it, my wife was livid. He basically told me that I was wasting my time coming to the E.R. and I shouldn't have come there. That was from the get go and it went downhill from there. My wife will be filing a complaint with the Administrator of the hospital. My symptoms are worsening and I'm in a lot of pain.....where in the hell else am I supposed to go on a Saturday night?
I'm so damn frustrated right now. |
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Wait until you wake up early during surgery and find yourself strapped down and a doctor with his hands inside your guts not a pleasant experience. Doctor was surprised I remembered it. Quoted:
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Big ol' pile of them. Getting really tired of doctors saying "well it's really rare" and "that's interesting". not a pleasant experience. Doctor was surprised I remembered it.
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What a fucking night.....1 A.M. and just got home. They had to go through the suicide protocol because I told the little nurse practioner that was acting as the E.R. Dr. to go screw himself. He deserved it, my wife was livid. He basically told me that I was wasting my time coming to the E.R. and I shouldn't have come there. That was from the get go and it went downhill from there. My wife will be filing a complaint with the Administrator of the hospital. My symptoms are worsening and I'm in a lot of pain.....where in the hell else am I supposed to go on a Saturday night? I'm so damn frustrated right now. |
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Unfortunately, management of a chronic condition in an emergent acute care setting is damned near impossible. Add to that the number of drug seekers they see on a daily basis (not saying you're one), and you get care providers who can get a bit rude with people who claim chronic conditions when showing up for pain management. Doesn't make the way you were treated right. Just offering a bit of background as to why you might have been treated like that. |
| The surgeon agreed today to remove the metal clips used for my gallbladder surgery. He says he doesn't think it will help, but agreed to do it. I am certain it will help and have some emotional relief today which helps deal with all the pain I'm in. I gave him a stack of medical literature validating Metal Hypersensitivity and Auto-immune reactions. |